Craniosynostosis-an ugly word

Things change when you have a child, especially your first child. You think that everything that you are doing might be wrong or at least that you don't know how things are going to turn out. As a new mom, I do worry about things that might happen and I worry if what I am doing is going to affect Josue in the future. The last thing you want to hear as a new parent is that your child is sick or that they are going to need surgery for something.

When Josue was about 3 months old, the pediatrician showed some concern about the shape of his head. The size of his head was normal but he felt that we should wait to see what would happen to the shape and whether it would round out. Well, here we are 9 months later, 2 specialists visits and one more specialist visit in a month. The doctors have diagnosed craniosynostosis for Josue which means that one or more sutures in his head have already fused. These are not supposed to fuse until he is two years old. This means he would have to have surgery to open these sutures and allow for his brain to keep developing. The surgery itself is long and to me seems risky.

This is where I have to ask myself if I am willing to put my son in someone else's hands to correct something that I feel is not that bad. I look at Josue's head and don't really see what is the big deal but I do realize that it could affect him later in his development and I definitely don't want to see that happen!

So now I am left with this dilemma. We have our last appointment which is a second opinion on January 7th. I am hoping and praying for a miracle. Maybe his sutures will open on their own and he won't need any surgery. That is my hope. If not, I will have to make one of the hardest decisions of my life. I will have to put my son in someone else's hand and trust that the Lord will take care of him like He has taken care of me all of my life.